{"id":12765,"date":"2022-03-02T13:16:47","date_gmt":"2022-03-02T12:16:47","guid":{"rendered":"https:\/\/francelyme.fr\/site\/?p=12765"},"modified":"2022-03-02T13:16:48","modified_gmt":"2022-03-02T12:16:48","slug":"retour-en-images-sur-la-rencontre-a-chartres-de-bretagne-le-05-fevrier-2022","status":"publish","type":"post","link":"https:\/\/francelyme.fr\/site\/retour-en-images-sur-la-rencontre-a-chartres-de-bretagne-le-05-fevrier-2022\/","title":{"rendered":"Retour en images sur la rencontre \u00e0 Chartres de Bretagne le 05 f\u00e9vrier 2022"},"content":{"rendered":"
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Animer une r\u00e9union fut une premi\u00e8re pour moi. Du coup, le faible nombre de participants a finalement \u00e9t\u00e9 plut\u00f4t rassurant. J\u2019esp\u00e8re bien s\u00fbr que progressivement la participation s\u2019\u00e9toffera. Je vois ces \u00ab caf\u00e9s Lyme \u00bb comme un moment privil\u00e9gi\u00e9 o\u00f9 les personnes peuvent s’exprimer sur leur v\u00e9cu ou l’exp\u00e9rience de la maladie souvent tr\u00e8s lourde, en toute libert\u00e9 et sans crainte de jugement.<\/p>\n\n\n\n

J’ai pr\u00e9sent\u00e9 l\u2019association , puis chacun\u00a0 a expos\u00e9 son parcours avec son lot de souffrances. On retrouve les m\u00eames sch\u00e9mas r\u00e9currents\u00a0: errance m\u00e9dicale, parcours de \u00ab dingue \u00bb, chaotique, avec ce que l\u2019on pourrait appeler de la maltraitance m\u00e9dicale (propos de m\u00e9decin offensant).

Ce qui est marquant chez toutes ces personnes, c\u2019est leur courage, leur \u00e9nergie (cela peut para\u00eetre paradoxal quand g\u00e9n\u00e9ralement la fatigue est omnipr\u00e9sente), leur d\u00e9termination, pour trouver un soulagement et leur r\u00e9silience. Elles ont une \u00e9norme volont\u00e9 de gu\u00e9rir ou d\u2019aider un proche malade. Des moyens gigantesques sont mis en \u0153uvre : d\u00e9placements sur de longues distances pour trouver le bon m\u00e9decin, recherches de renseignement chronophage (livres, internet\u2026) d\u00e9penses importantes dans des m\u00e9dicaments…
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H\u00e9las, tous ses efforts ne sont parfois pas r\u00e9compens\u00e9s. C\u2019est avec grande \u00e9motion que nous avons \u00e9cout\u00e9 Th\u00e9r\u00e8se qui nous a parl\u00e9 du d\u00e9c\u00e8s de sa fille apr\u00e8s un long combat. Et ce, malgr\u00e9 l\u2019intervention mais trop tardive du Pr Perronne, dont elle a lou\u00e9 la grande humanit\u00e9. M\u00eame abn\u00e9gation pour M\u00e9lanie qui lutte \u00e0 la fois pour elle et son fils.<\/p>\n\n\n\n

Ces t\u00e9moignages m\u2019ont amen\u00e9 \u00e0 r\u00e9fl\u00e9chir sur la mani\u00e8re d’acqu\u00e9rir une formation de guerrier. Car c\u2019est bien de cela qu\u2019il s\u2019agit devenir un guerrier pour se battre continuellement. Se battre contre la maladie, les dogmes, les pr\u00e9jug\u00e9s, la vision officielle m\u00e9dicale, la s\u00e9cu \u2026 La liste est interminable.<\/p>\n\n\n\n

Autres sujets abord\u00e9s :<\/p>\n\n\n\n

– Comment parler de la pr\u00e9vention sans cr\u00e9er de psychose ?<\/p>\n\n\n\n

– Les ch\u00e9lations : Elles doivent \u00eatre faites correctement, attention danger avec des praticiens non-professionnel.<\/p>\n\n\n\n

– Les tests : Faire passer son sang pour celui d\u2019un cheval pour avoir un test v\u00e9t\u00e9rinaire plus fiable.<\/p>\n\n\n\n

– \u00c9lectrosensibilit\u00e9 : Test s\u00fbr \u00e0 Nantes<\/p>\n\n\n\n

– La fibromyalgie toujours \u00e9voqu\u00e9e en cas d\u2019incompr\u00e9hension de certains sympt\u00f4mes (c\u2019est la boite fourre-tout.).<\/p>\n\n\n\n

– Les troubles cognitifs : pep scan \u00e0 Cr\u00e9teil<\/p>\n\n\n\n

– La recherche : Point fondamental, sans elle pas d\u2019\u00e9volution possible. Une id\u00e9e a \u00e9t\u00e9 \u00e9mise de constituer deux caisses \u00e0 France Lyme : une pour l\u2019association, l\u2019autre pour constituer un fond pour la recherche.
– La capitalisation, le suivi : constituer une banque de donn\u00e9es des personnes gu\u00e9ries.<\/p>\n\n\n\n

– Le changement des mentalit\u00e9s des gens en g\u00e9n\u00e9ral \u00e9volue plut\u00f4t bien, avec une prise de conscience du danger des tiques.<\/p>\n\n\n\n

– Le manque de m\u00e9decin : La disparition progressive des m\u00e9decins connaissant le Lyme chronique et pouvant prescrire des antibiotiques, ajoute des difficult\u00e9s suppl\u00e9mentaires pour se soigner.<\/p>\n\n\n\n

Cette premi\u00e8re r\u00e9union est encourageante. La faible participation peut s\u2019expliquer par la crainte du contr\u00f4le du pass vaccinal. Les questions sur le sujet par t\u00e9l\u00e9phone ou par mail en t\u00e9moignent.<\/p>\n\n\n\n

Apr\u00e8s la fermeture de la salle, les discussions ont continu\u00e9s \u00e0 l\u2019ext\u00e9rieur pendant plus d\u2019une demi-heure pour certains, mettant en \u00e9vidence le temps trop court de 2 heures.<\/p>\n\n\n\n

Je pense faire un nouveau \u00ab caf\u00e9 Lyme \u00bb le samedi 26 mars.<\/p>\n\n\n\n

Pascal<\/p>\n\n\n\n

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