{"id":14435,"date":"2023-05-08T18:17:11","date_gmt":"2023-05-08T16:17:11","guid":{"rendered":"https:\/\/francelyme.fr\/site\/?p=14435"},"modified":"2023-05-08T18:17:12","modified_gmt":"2023-05-08T16:17:12","slug":"retour-sur-le-dernier-cafe-lyme-a-vitre","status":"publish","type":"post","link":"https:\/\/francelyme.fr\/site\/retour-sur-le-dernier-cafe-lyme-a-vitre\/","title":{"rendered":"Retour sur le dernier caf\u00e9 lyme \u00e0 Vitr\u00e9"},"content":{"rendered":"
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J’ai d\u00e9but\u00e9 cette rencontre en rappelant les derni\u00e8res actualit\u00e9s de France Lyme, en r\u00e9f\u00e9rence \u00e0 la lettre d’informations du mois d’avril. J’ai insist\u00e9 sur le fait que l’association est \u00e0 la recherche de t\u00e9moignages \u00e9crits et de courts t\u00e9moignages vid\u00e9os de malades \u00e0 l’occasion du mois du \u00ab\u00a0Lyme Protest\u00a0\u00bb.<\/p>\n\n\n\n

J’ai \u00e9voqu\u00e9 le fait que j’ai int\u00e9gr\u00e9 un groupe de travail du CRMVT de Rennes ayant pour but l’am\u00e9lioration de la prise en charge des malades. J’ai notamment fait un retour sur la r\u00e9union du 27 f\u00e9vrier. J’ai inform\u00e9 aussi avoir re\u00e7u un questionnaire envoy\u00e9 par le CRMVT de Rennes sur l’\u00e9laboration d’ateliers autour de diff\u00e9rentes th\u00e9matiques (d’autres malades pris en charge par le CRMVT l’ont \u00e9galement re\u00e7u). Le CRMVT de Rennes organise une journ\u00e9e de sensibilisation aux maladies vectorielles li\u00e9es aux tiques le jeudi 25 mai 2023 de 10h \u00e0 17h30.<\/p>\n\n\n\n

Nous n’avions jamais \u00e9t\u00e9 aussi nombreux : 9 malades, 3 conjoints, les parents d’une malade et une accompagnatrice, soit 15 personnes. Chacun a p\u00fb s’exprimer sur son parcours de malade, en toute libert\u00e9 et sans crainte de jugement. Les sujets abord\u00e9s ont \u00e9t\u00e9 les suivants :<\/p>\n\n\n\n

  •  l’errance m\u00e9dicale subie (souvent pendant des ann\u00e9es),<\/li>
  •  l’importance de l’alimentation pour diminuer nos sympt\u00f4mes,<\/li>
  • les diff\u00e9rents traitements sous phytoth\u00e9rapie,<\/li>
  • les pertes d’emploi dues \u00e0 la maladie,<\/li>
  • les difficult\u00e9s rencontr\u00e9es au sein de la cellule familiale,<\/li>
  • les m\u00e9decines non conventionnelles,<\/li>
  • la non-prise en charge par le CRMVT en lien avec la non reconnaissance du Lyme Chronique,<\/li>
  • le manque de fiabilit\u00e9 des tests fran\u00e7ais (Elisa et Western Blot).<\/li><\/ul>\n\n\n\n

    Autres sujets abord\u00e9s :<\/p>\n\n\n\n

    . Pascal et moi avons \u00e9galement partag\u00e9 notre parcours de Lym\u00e9 et \u00e9voqu\u00e9 notre d\u00e9part prochain pour la Clinique Alviasana \u00e0 Augsbourg en Allemagne, de ce fait le caf\u00e9 Lyme pr\u00e9vu au mois de juin a \u00e9t\u00e9 annul\u00e9.<\/p>\n\n\n\n

    Cette rencontre s’est pass\u00e9e de mani\u00e8re conviviale, nous nous retrouvons avec plaisir.<\/p>\n\n\n\n

    Je remercie Pascal pour sa pr\u00e9sence et son aide.<\/p>\n\n\n\n

    Laurence<\/p>\n\n\n\n

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    <\/div><\/div>\n\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":16,"featured_media":14436,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[58,60],"tags":[],"class_list":["post-14435","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-bretagne","category-rencontres"],"yoast_head":"\nRetour sur le dernier caf\u00e9 lyme \u00e0 Vitr\u00e9 - Association France Lyme<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/francelyme.fr\/site\/retour-sur-le-dernier-cafe-lyme-a-vitre\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Retour sur le dernier caf\u00e9 lyme \u00e0 Vitr\u00e9 - Association France Lyme\" \/>\n<meta property=\"og:url\" content=\"https:\/\/francelyme.fr\/site\/retour-sur-le-dernier-cafe-lyme-a-vitre\/\" \/>\n<meta property=\"og:site_name\" content=\"Association France Lyme\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/france.lyme\" \/>\n<meta property=\"article:published_time\" content=\"2023-05-08T16:17:11+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2023-05-08T16:17:12+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/francelyme.fr\/site\/wp-content\/uploads\/2023\/05\/photo-cafe-Lyme-n\u00b01-290423-.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"807\" \/>\n\t<meta property=\"og:image:height\" content=\"392\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Editeur\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@francelyme\" \/>\n<meta name=\"twitter:site\" content=\"@francelyme\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Editeur\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/francelyme.fr\\\/site\\\/retour-sur-le-dernier-cafe-lyme-a-vitre\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/francelyme.fr\\\/site\\\/retour-sur-le-dernier-cafe-lyme-a-vitre\\\/\"},\"author\":{\"name\":\"Editeur\",\"@id\":\"https:\\\/\\\/francelyme.fr\\\/site\\\/#\\\/schema\\\/person\\\/b3a32c0e865447c2586961956f5d867e\"},\"headline\":\"Retour sur le dernier caf\u00e9 lyme \u00e0 Vitr\u00e9\",\"datePublished\":\"2023-05-08T16:17:11+00:00\",\"dateModified\":\"2023-05-08T16:17:12+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/francelyme.fr\\\/site\\\/retour-sur-le-dernier-cafe-lyme-a-vitre\\\/\"},\"wordCount\":367,\"publisher\":{\"@id\":\"https:\\\/\\\/francelyme.fr\\\/site\\\/#organization\"},\"image\":{\"@id\":\"https:\\\/\\\/francelyme.fr\\\/site\\\/retour-sur-le-dernier-cafe-lyme-a-vitre\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/francelyme.fr\\\/site\\\/wp-content\\\/uploads\\\/2023\\\/05\\\/photo-cafe-Lyme-n\u00b01-290423-.jpg\",\"articleSection\":[\"Bretagne\",\"Rencontres\"],\"inLanguage\":\"fr-FR\"},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/francelyme.fr\\\/site\\\/retour-sur-le-dernier-cafe-lyme-a-vitre\\\/\",\"url\":\"https:\\\/\\\/francelyme.fr\\\/site\\\/retour-sur-le-dernier-cafe-lyme-a-vitre\\\/\",\"name\":\"Retour sur le dernier caf\u00e9 lyme \u00e0 Vitr\u00e9 - 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