{"id":16653,"date":"2024-09-01T19:11:00","date_gmt":"2024-09-01T17:11:00","guid":{"rendered":"https:\/\/francelyme.fr\/site\/?p=16653"},"modified":"2024-07-22T19:13:39","modified_gmt":"2024-07-22T17:13:39","slug":"editorial-de-juillet-2024","status":"publish","type":"post","link":"https:\/\/francelyme.fr\/site\/editorial-de-juillet-2024\/","title":{"rendered":"\u00c9ditorial de juillet 2024"},"content":{"rendered":"
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Cher(e) Ami(e), Cher(e) Membre, Cher(e) Soutien,<\/p>\n\n\n\n

Pour l\u2019\u00e9t\u00e9, exceptionnellement, une lettre d\u2019info tr\u00e8s courte pour vous parler de deux bonnes nouvelles pour notre association, et de deux gros coup de c\u0153ur :<\/p>\n\n\n\n

1 \u2013 Premi\u00e8re bonne nouvelle<\/strong> : le Minist\u00e8re de la Sant\u00e9 vient de reconduire l\u2019agr\u00e9ment de France Lyme pour les cinq ann\u00e9es \u00e0 venir. Cet agr\u00e9ment correspond au respect d\u2019un certain nombre de crit\u00e8res, dont trois principaux : l\u2019association doit \u00eatre \u00ab d\u2019int\u00e9r\u00eat g\u00e9n\u00e9ral \u00bb, son fonctionnement doit \u00eatre d\u00e9mocratique, et ses finances doivent \u00eatre transparentes. A partir du dossier d\u00e9pos\u00e9 et de l\u2019enqu\u00eate qu\u2019il a men\u00e9e, le Minist\u00e8re a confirm\u00e9 la reconduction de l\u2019agr\u00e9ment de l\u2019association. C\u2019est une grande victoire, cette d\u00e9cision va nous permettre de continuer \u00e0 repr\u00e9senter les malades dans toutes les instances sanitaires qui concerneront la maladie de Lyme et les MVT. Un grand merci au passage \u00e0 Jeanne-Marie qui a r\u00e9ussi \u00e0 faire aboutir ce gros dossier si important pour l\u2019association et les malades.<\/p>\n\n\n\n

2 \u2013 Deuxi\u00e8me bonne nouvelle<\/strong> : Lilo, vient de nous faire un premier versement, un peu symbolique certes, 130 euros, mais tr\u00e8s prometteur pour la suite. Lilo.org est un moteur de recherche \u00ab \u00e9cologique et solidaire \u00bb fran\u00e7ais, qui repose lui-m\u00eame sur Bing, Google et Yahoo, et qui a pour vocation de financer des projets sociaux et environnementaux de votre choix. France Lyme est \u00e0 pr\u00e9sent r\u00e9f\u00e9renc\u00e9e par Lilo.org. Je vous rappelle qu\u2019en l\u2019utilisant comme moteur de recherche vous pouvez accumuler des \u00ab gouttes \u00bb \u00e0 chaque recherche, et transformer ces gouttes en euros au b\u00e9n\u00e9fice de l\u2019association. Merci d\u2019y penser, certaines associations collectent ainsi des sommes substantielles gr\u00e2ce \u00e0 Lilo : les petits ruisseaux font les grandes rivi\u00e8res !<\/p>\n\n\n\n

3 \u2013 Notre premier gros coup de c\u0153ur <\/strong>: celui qu\u2019on a pour l\u2019incroyable aventure ALP\u2019Lyme, un d\u00e9fi XXL lanc\u00e9 par trois jeunes sportifs \u00e0 travers les Alpes, du Lac L\u00e9man \u00e0 Nice, au profit de la lutte contre la maladie de Lyme. Allez d\u00e9couvrir ce projet extraordinaire sans attendre sur notre site, sur le site d\u2019ALP\u2019Lyme et sur les r\u00e9seaux sociaux ! France Lyme est partenaire du projet, et nous sommes garants de la collecte des dons : les sommes r\u00e9colt\u00e9es seront int\u00e9gralement utilis\u00e9es pour faire des actions de pr\u00e9vention, pour aider les malades et financer des travaux de recherche. Merci d\u2019avance de soutenir ce d\u00e9fi, d\u2019en autour de vous, et de relayer dans votre entourage le lien vers la cagnotte du projet. Pr\u00e9cision importante : tout don \u00e0 France Lyme est d\u00e9ductible des imp\u00f4ts \u00e0 hauteur de 66%, autrement dit un don de 50 \u20ac ne co\u00fbtera au donateur que 17 \u20ac en r\u00e9alit\u00e9.<\/p>\n\n\n\n

4 \u2013 Notre deuxi\u00e8me gros coup de c\u0153ur<\/strong> : celui qu\u2019on a eu pour les quatre autres aventures humaines et sportives qui se sont mobilis\u00e9s ces derni\u00e8res semaines :<\/p>\n\n\n\n

    \n
  • celui de Thibaud Trichard : le triathlon \u00ab Half Iron Man du Mercantour \u00bb,<\/li>\n\n\n\n
  • celui de M\u00e9lanie : le d\u00e9fi automobile \u00ab Alpina Raid \u00bb,<\/li>\n\n\n\n
  • celui de Lise : le d\u00e9fi de nage en eau libre \u00ab d\u00e9fi de Monte Cristo \u00bb,<\/li>\n\n\n\n
  • et celui de Killian Le Guyader : le d\u00e9fi en cours \u00ab de l\u2019Europe \u00e0 l\u2019Asie en v\u00e9lo \u00bb,
    Un grand bravo et mille mercis \u00e0 ces sportifs enthousiastes et g\u00e9n\u00e9reux, tous touch\u00e9s pr\u00e9c\u00e9demment par la maladie, qui ont d\u00e9cid\u00e9 de consacrer leur temps et leur \u00e9nergie \u00e0 soutenir l\u2019association, et \u00e0 sensibiliser le grand public sur la maladie.<\/li>\n<\/ul>\n\n\n\n

    Comme tous les mois, j\u2019adresse ici un grand merci \u00e0 toutes les \u00e9quipes de b\u00e9n\u00e9voles impliqu\u00e9es sur le terrain et dans les services de France Lyme.
    N\u2019h\u00e9sitez pas \u00e0 vous manifester et \u00e0 participer aux \u00e9v\u00e9nements ou aux permanences organis\u00e9es dans les sections locales.<\/p>\n\n\n\n

    Pour en savoir plus sur l\u2019actualit\u00e9, je vous recommande les articles de la revue de presse ci-dessous.<\/p>\n\n\n\n

    Un grand merci aussi \u00e0 Nathalie pour ses VisioLyme, ces rendez-vous d\u2019\u00e9change en visio entre malades. N\u2019h\u00e9sitez pas \u00e0 vous y inscrire, c\u2019est une mani\u00e8re simple et efficace pour partager des infos et \u00e9changer des retours d\u2019exp\u00e9rience sur la maladie.<\/p>\n\n\n\n

    A l\u2019instant du bouclage de cette lettre d\u2019info, nous apprenons une triste nouvelle : le d\u00e9c\u00e8s d\u2019Arlette Perrillat, qui a \u00e9t\u00e9 plusieurs ann\u00e9es durant responsable de la Section Savoie et membre du CA de France Lyme. Au nom de l\u2019association, je voudrais ici lui rendre hommage et adresser \u00e0 son mari Fran\u00e7ois et \u00e0 sa famille nos sinc\u00e8res condol\u00e9ances.<\/p>\n\n\n\n

    Merci pour votre soutien, merci pour vos dons : faire un don
    Amicalement,
    Fr\u00e9d\u00e9ric MAIRE
    Pr\u00e9sident de France Lyme<\/p>\n

    \n\n
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