{"id":19797,"date":"2026-05-14T14:13:51","date_gmt":"2026-05-14T12:13:51","guid":{"rendered":"https:\/\/francelyme.fr\/site\/?p=19797"},"modified":"2026-05-14T14:13:52","modified_gmt":"2026-05-14T12:13:52","slug":"audition-de-france-lyme-au-senat","status":"publish","type":"post","link":"https:\/\/francelyme.fr\/site\/audition-de-france-lyme-au-senat\/","title":{"rendered":"Audition de France Lyme au S\u00e9nat"},"content":{"rendered":"
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France Lyme a \u00e9t\u00e9 auditionn\u00e9e au S\u00e9nat dans le cadre de la table ronde \u00ab Maladie de Lyme : un enjeu de sant\u00e9 et d’environnement \u00bb.<\/p>\n\n\n\n

Notre pr\u00e9sidente, Christ\u00e8le Dumas-Gonnet, est intervenue pour porter la voix des patients atteints de maladies vectorielles \u00e0 tiques.<\/p>\n\n\n\n

Voir la rediffusion :<\/p>\n\n\n\n

https:\/\/videos.senat.fr\/video.5817062_69faddb6dc277.maladie-de-lyme–un-enjeu-de-sante-et-denvironnement<\/a><\/p>\n\n\n\n

Lors de cette audition, nous avons rappel\u00e9 l’\u00e9tat des lieux : la reconnaissance du Lyme long est une avanc\u00e9e importante, mais la prise en charge ne suit pas encore.<\/p>\n\n\n\n

Trop de patients restent en errance, sans diagnostic clair, sans suivi adapt\u00e9, ou en dehors du parcours de soins. Le parcours actuel reste trop peu lisible, difficile d’acc\u00e8s, insuffisamment financ\u00e9 et encore trop cloisonn\u00e9 pour r\u00e9pondre \u00e0 des maladies chroniques complexes.<\/p>\n\n\n\n

Nous avons aussi rappel\u00e9 que Lyme ne doit plus \u00eatre pens\u00e9 seul. Il s’inscrit dans un ensemble plus large de syndromes post-infectieux : Lyme long, Covid long, EM\/SFC… Ces maladies restent encore mal comprises et n\u00e9cessitent des moyens de recherche \u00e0 la hauteur.<\/p>\n\n\n\n

Les grandes pistes d’action pr\u00e9conis\u00e9es par France Lyme :<\/p>\n\n\n\n

-Mieux financer la recherche, notamment pour comprendre pourquoi certains patients basculent dans des formes longues et pour d\u00e9velopper des traitements r\u00e9ellement efficaces.<\/p>\n\n\n\n

-Renforcer le parcours de soins, avec plus de moyens pour les centres de r\u00e9f\u00e9rence et de comp\u00e9tences, davantage de pluridisciplinarit\u00e9, et un meilleur lien ville-h\u00f4pital.<\/p>\n\n\n\n

-Am\u00e9liorer le diagnostic, former les m\u00e9decins et d\u00e9velopper de nouveaux outils : biomarqueurs, imagerie, recherche des co-infections.<\/p>\n\n\n\n

-Mettre en place un v\u00e9ritable service d’information et d’orientation pour les patients et leurs proches, sur le mod\u00e8le de services d\u00e9j\u00e0 existants pour d’autres maladies.<\/p>\n\n\n\n

Et enfin, mieux int\u00e9grer l’environnement et les modes de vie dans la pr\u00e9vention : <\/p>\n\n\n\n

Nous sommes ce que nous mangeons, ce que nous absorbons, et nous sommes aussi profond\u00e9ment influenc\u00e9s par notre niveau de stress.<\/p>\n\n\n\n

Les patients le savent : quand ils agissent sur l’alimentation, les toxiques environnementaux et le stress, ils vont souvent un peu mieux. Ce n’est pas une solution miracle, mais c’est un levier r\u00e9el.<\/p>\n\n\n\n

Promouvoir une alimentation moins inflammatoire, r\u00e9duire l’exposition aux polluants et toxiques environnementaux, mieux prendre en compte le stress, notamment dans la vie professionnelle : ces enjeux concernent les malades, mais aussi chacun d’entre nous.<\/p>\n\n\n\n

C’est tout le sens de l’approche One Health : comprendre les liens entre sant\u00e9 humaine, environnement, alimentation, conditions de vie et pr\u00e9vention.<\/p>\n\n\n\n

Face \u00e0 ces maladies complexes, la r\u00e9ponse ne peut \u00eatre que collective : m\u00e9decins, chercheurs, institutions, patients, associations, acteurs de l’environnement et du monde du travail.<\/p>\n\n\n\n

Notre priorit\u00e9 reste inchang\u00e9e : aucun patient ne doit rester sans solution, ni en dehors du parcours de soins. <\/p>\n\n\n\n

Cette audition a aussi permis de mieux se connaitre entre les diff\u00e9rents acteurs et de r\u00e9flechir \u00e0 des actions communes pour la suite.<\/p>\n\n\n\n

#MaladieDeLyme #LymeLong #SyndromesPostInfectieux #Sant\u00e9 #Environnement #OneHealth #Recherche #Pr\u00e9vention<\/p>\n\n\n

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